February 2019 Newsletter

Updates

Purple Day

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At just nine years old, Cassidy Megan planted the seed that would one day grow into an international phenomenon.

After being diagnosed with epilepsy when she was seven, Megan realized many of her classmates knew very little about seizure disorders. When she set out to change that realization, Purple Day was born, and on June 28, 2012, the Purple Day Act (Bill C-278) received Royal Assent.

Anybody interested in supporting Purple Day in Simcoe County can become a “Purple Ambassador” by wearing purple and spreading awareness of epilepsy in the area and to family and friends.  Find out more here.

New Classification OF SEIZURE TYPES

capture  The International League Against Epilepsy (ILAE) is a scientific organization devoted to improving the lives of those living with epilepsy by promoting research, education, and training. They have recently developed a new way of classifying seizures to help us better diagnose and treat epilepsy. The new system has new terms for seizures that didn’t fit in the old classification.

Read the list here.

Dates to Remember

Information Session, Bayfield Mall Community Room

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Our Vice-President and EEG Technologist at the RVH, Loesje Pascos, will be talking about Electroencephalography’s (EEG’s), and what they show during testing in regards to epilepsy and diagnosis.  Discussion may also include suggestions regarding next steps.

This will be held at the Bayfield Mall in the Community Room (beside Rexall Pharmacy)

All are welcome!

You must fill out the form to RSVP.

Come Bowling With Us!

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We’re looking to put a fun group together to come out on Sunday, February 24th from 1pm to 3pm at the Barrie Bowlerama in the Bayfield Mall.  It’s family-friendly and pizza and drinks will be provided. If you are interested in attending, please be sure to RSVP at by Friday, February 1st.

ICYMI (In Case You Missed It)

International Epilepsy Day on Feb 11th

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International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. Every year on the second Monday of February people join together to celebrate and highlight the problems faced by people with epilepsy, their families and carers.

This is a day for everyone, no matter where you are, no matter how small your group or large your area, no matter whether you focus on the medical or the social aspects of the disease. We want you to help us celebrate International Epilepsy Day! Let’s speak with one global voice.

This year, organizations were encouraged to create a short video about epilepsy and submit it for a chance to win $500.  Shawna Bailey, our Executive Director, created an engaging video to teach children the very basics of what epilepsy is, what happens, and how they can help by being a good friend.  To view the video, please click here.

Boston Pizza Fundraising Night

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We’re getting ready early for Purple Day (March 26th) with Boston Pizza in Barrie!

Come out on Monday, March 4th (South End Location) between 5pm and 8pm and dine for a great cause!

Celebrity Servers will be on-site, and 10% of food sales comes back to us to continue our support and advocacy within Simcoe County!  

To be placed on the “Reminder List”, please fill out the form below.

(Please note:  You an right-click on the poster to display it at your work, agency, or school)

Resource

Ontario Epilepsy Guidelines

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Beginning in 2014, a task force supported by Critical Care Services Ontario released a series of guidelines for epilepsy care. The goal of these guidelines is to improve treatment and access to care for people with epilepsy. This booklet highlights some of the key recommendations from the guidelines, which are based on current evidence. If you have epilepsy, the information in these guidelines can help you, your caregivers and your health care providers to make informed decisions about your treatment.  Read the full guide here.